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Heartbreaking photo of brother comforting his dying sister goes viral

Posted: Jun 11, 2018 4:18 PM Updated:
Credit: Matt Sooter via Facebook Credit: Matt Sooter via Facebook

A little boy sitting bedside with his sister in the hospital has gone viral, tugging at heartstrings across the country.

Matt Sooter, the father of Addy, made an emotional Facebook post on June 2 that has since been widely shared.

"A little boy should not have to say goodbye to his partner in crime, his play mate, his best friend, his little sister," the post begins.

Adlynn Joy Sooter was two years old when she was diagnosed with a cancerous brain tumor in November 2016. She was only given a few months to live, People reports.

Addy's story was first shared on "Love What Matters" by her father. He described how before the diagnosis, "life was perfect."

He explained that he'd just gotten a new job, and his wife and two children were "healthy and strong and loving life."

Then, in October 2016, the family noticed Addy was walking a little funny while at a trip to Silver Dollar City in Branson, Mo.

According to Sooter's post, the walking problems only got worse in the following days, and new problems began surfacing. Her hands trembled. She couldn't eat properly with a fork or spoon. They knew she needed to see a doctor.

Ultimately, Addy would need an emergency MRI. Then, the news only got worse.

Doctors told the Sooter family that there was an aggressive tumor growing in her brain stem, and there was no treatment or cure. Addy was going to die in a matter of months, the family was told.

A biopsy would confirm that 2-year-old Addy had Diffuse Intrinsic Pontine Glioma (DIPG), the post says.

After months of radiation, her tumor shrunk and she was able to enjoy everyday childhood activities. Unfortunately, that would only be temporary, Sooter described.

A July 2017 MRI would confirm that the tumor was again growing.

The family would travel to Mexico for experimental, and extremely expensive, treatment.

That treatment briefly stabilized the cancer, but it would soon spread to the lower part of her brain and down her spine.

That brings us to Sooter's Facebook post on June 2 when he described Addy's symptoms as progressing rapidly. She was having trouble eating and swallowing, and spent a majority of her time sleeping.

Addy's brother, Jackson, wouldn't leave her side, Sooter said.

The very next day, on June 3, Sooter announced that Addy had passed. She battled for 19 months.

"She passed from this life to the next just as she had lived: stubbornly but also peacefully, and surrounded by family. She wasn't in any pain at the end."

May Addlyn Joy Sooter rest in peace.

If you'd like to learn more about DIPG and join in the fight against it, click here.

 

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